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Cystic Fibrosis & Lockdown/ShieldingDue to my Cystic Fibrosis I am classed as a Clinically Extremely Vulnerable person, which means during the pandemic brought on by Coronavirus aka COVID-19, I’ve had to go into shielding since the lockdown first occurred in Read More …
The moment a lot of people have been waiting for, an episode of Doctor Who that tells the true historic story about the discovery of the Cystic Fibrosis gene in 1989 and the revolutionary treatment made as a result, which includes the most recent miracle drug, Kaftrio, which is currently the closest to a cure for Cystic Fibrosis. Read More …
During lockdown and shielding, I’ve been rather busy building a TARDIS set and making TARDISodes. Episodes so far are: COVID Master of Death Planet Unknown M508D (working title) * * This film is currently being written and will star Chris Read More …
Born with Cystic Fibrosis in 1979, I, as well as all CF people, have been waiting for this day…a treatment that is close to a cure to Cystic Fibrosis.
Here is a video blog about my journey as I start taking the treatment. Read More …
All foods digest in the body at different times. This is how long they sit in the stomach before passing into the intestine. It’s important to understand the different food digestion times to avoid digestive issues or discomfort. If you Read More …
Please click here to sign the petition People with certain medical conditions are exempt from paying prescription charges. However, the list of exempt conditions does not include cystic fibrosis. This is because the exempt list was drawn up over 40 Read More …
Today I’ve had news that NHS England has reached a deal with Orkambi manufacturers Vertex Pharmaceuticals after months of talks. This was brought to my attention through the Cystic Fibrosis (CF) clinic I attend after it was announced on BBC News Read More …
Wednesday, 16 October 2019 Today at the CF clinic I did an endurance test, something I do as part of my annual assessment to see if changes to my treatment are required. Usually, there are minor tweaks. Mainly new and Read More …
Thursday, 10 October 2019 Today is World Mental Health Day. Some will know what it means to raise the importance of talking about what is on your mind, which is one way of dealing with mental health. Another is doing Read More …
Originally published on Tuesday, 19 December 2017 Update on my fight against DWP’s decision on my PIP application: It’s been a whilst since I last wrote a blog in regards to my PIP appeal. The tribunal came and I was Read More …