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Cystic Fibrosis & Lockdown/ShieldingDue to my Cystic Fibrosis I am classed as a Clinically Extremely Vulnerable person, which means during the pandemic brought on by Coronavirus aka COVID-19, I’ve had to go into shielding since the lockdown first occurred in Read More …
The moment a lot of people have been waiting for, an episode of Doctor Who that tells the true historic story about the discovery of the Cystic Fibrosis gene in 1989 and the revolutionary treatment made as a result, which includes the most recent miracle drug, Kaftrio, which is currently the closest to a cure for Cystic Fibrosis. Read More …
During lockdown and shielding, I’ve been rather busy building a TARDIS set and making TARDISodes. Episodes so far are: COVID Master of Death Planet Unknown M508D (working title) * * This film is currently being written and will star Chris Read More …
Born with Cystic Fibrosis in 1979, I, as well as all CF people, have been waiting for this day…a treatment that is close to a cure to Cystic Fibrosis.
Here is a video blog about my journey as I start taking the treatment. Read More …
Please click here to sign the petition People with certain medical conditions are exempt from paying prescription charges. However, the list of exempt conditions does not include cystic fibrosis. This is because the exempt list was drawn up over 40 Read More …
Today I’ve had news that NHS England has reached a deal with Orkambi manufacturers Vertex Pharmaceuticals after months of talks. This was brought to my attention through the Cystic Fibrosis (CF) clinic I attend after it was announced on BBC News Read More …
Originally published on Tuesday, 28 February 2017 When I was young (I’m a 1980’s child), management of CF was primitive compared to how it is now. Diet & TreatmentFrom what I remember, Creon wasn’t on the market until around 1985. Read More …
Originally published on Monday, 20 February 2017 On my way home from Pure gym, I was delighted to see Warrington Borough Transport (WBT) display a poster raising awareness about Cystic Fibrosis (CF) on the bus stop on Manchester Road opposite Read More …
Originally published on Monday, 13 February 2017 Lloyds Pharmacy informed me Holes Lane Surgery have been chosen for a pilot online patient service, which has already been rolled out across the Halton and Liverpool areas. The service is called “SystmOnline“. Read More …
Originally published on Tuesday, 17 January 2017 On 15 October 1977 my older brother, Paul, then aged 6 years old, sadly passed away after being overpowered by the deadly genetic disorder, Cystic Fibrosis (CF). On 24 August 1979, I was Read More …