From The Chest
Over the past couple of months I’ve been having Zoom chats with fellow Cystic Fibrosis friends Chris and Gary. We have been talking about our day to day experiences living with Cystic Fibrosis. Read More …
Category: CF Info
Cystic Fibrosis Awareness on YouTube
Over the past couple of months I’ve been having Zoom chats with fellow Cystic Fibrosis friends Chris and Gary. We have been talking about our day to day experiences living with Cystic Fibrosis. Read More …
Cystic Fibrosis, Lockdown & Doctor Who
Cystic Fibrosis & Lockdown/ShieldingDue to my Cystic Fibrosis I am classed as a Clinically Extremely Vulnerable person, which means during the pandemic brought on by Coronavirus aka COVID-19, I’ve had to go into shielding since the lockdown first occurred in Read More …
Doctor Who – Master of Deception
The moment a lot of people have been waiting for, an episode of Doctor Who that tells the true historic story about the discovery of the Cystic Fibrosis gene in 1989 and the revolutionary treatment made as a result, which includes the most recent miracle drug, Kaftrio, which is currently the closest to a cure for Cystic Fibrosis. Read More …
Doctor Who – M508D
During lockdown and shielding, I’ve been rather busy building a TARDIS set and making TARDISodes. Episodes so far are: COVID Master of Death Planet Unknown M508D (working title) * * This film is currently being written and will star Chris Read More …
Kaftrio – day 1
Born with Cystic Fibrosis in 1979, I, as well as all CF people, have been waiting for this day…a treatment that is close to a cure to Cystic Fibrosis.
Here is a video blog about my journey as I start taking the treatment. Read More …
Add Cystic Fibrosis to the exempt from prescription charges list
Please click here to sign the petition People with certain medical conditions are exempt from paying prescription charges. However, the list of exempt conditions does not include cystic fibrosis. This is because the exempt list was drawn up over 40 Read More …
A time for the Cystic Fibrosis community to celebrate…
Today I’ve had news that NHS England has reached a deal with Orkambi manufacturers Vertex Pharmaceuticals after months of talks. This was brought to my attention through the Cystic Fibrosis (CF) clinic I attend after it was announced on BBC News Read More …
Life with Cystic Fibrosis
Originally published on Tuesday, 28 February 2017 When I was young (I’m a 1980’s child), management of CF was primitive compared to how it is now. Diet & TreatmentFrom what I remember, Creon wasn’t on the market until around 1985. Read More …
Cystic Fibrosis, Orkambi & Warrington Borough Transport
Originally published on Monday, 20 February 2017 On my way home from Pure gym, I was delighted to see Warrington Borough Transport (WBT) display a poster raising awareness about Cystic Fibrosis (CF) on the bus stop on Manchester Road opposite Read More …