QBW251 – Breathing easy in Whitby

Originally published on Saturday, 31 October 2015

It’s been a week since I last put fingers to keyboard for updating people with the goings-on in the QBW251 trial.  So what has been happening?  I hear you all say.

Here is a lowdown of events from day 6 to today (day 12)…

DAY 6 (Sunday, 25 Oct 2015)
Earlier this week I reported I had a sensation in my lungs and sinuses as though they were clearing themselves more.

Today at around 2:30pm whilst doing a workout at the gym, I noticed I was breathing easier than normal as I pushed the weights.

Could this be further evidence of me being on the drug and not the placebo or coincidence?

Although the only people to confirm this are those in charge of the trial, the effects I’m experiencing do bring me to hope it’s not a coincidence and the drug is doing as it should.

Again time will tell. In the meantime, one can’t help but be excited by all this. It’s about time the Cystic Fibrosis community had some form of hope of a better life thanks to modern medicine.

DAY 7 (Monday, 26 Oct 2015)
Today I had an appointment at Wythenshawe Hospital in regards to the drug trial. Basically to see how things are ticking.

Weight: 67.1kg (up by 1.3kg since trial started).

FEV1: 2.06; FVC: 4.52 (normal readings – the question is, should this have gone up as a result of drug working?).

The best part of today is the nurse was able to take blood samples the first time. Yay!

DAY 12 (Friday, 30 Oct 2015)
Last day of holiday in Whitby.

Today I went to Whitby town centre and climbed 199 steps up to Whitby Abbey.

Guess what?

No breathless feeling.

Could this be another sign of drug working?

Or has doing fitness for the last couple of years paid off?

Again only time will tell.

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