Originally published on Monday, 2 November 2015
Today I had an appointment at Wythenshawe Hospital in regards to the drug trial.
The sad part of today is that it’s the last day I’m on QBW251.
However, this doesn’t mean I’m at the end of the trial. I still have to return on day 28 and 42 for further tests…I’m guessing to see changes in the body as the drug leaves the system.
Weight: 68.3kg (up by 1.2kg since last Monday).
I’ve gained since 18 March 2015 6.1kg (1 stone)…amazing.
This morning a repeat of some screening tests as followed:
- CFQ-R questionnaire
- Vital signs
- Body temperature
- Urine collection
- Blood sampling
- Sweat chloride assessment
- Pulse oximetry
With blood sampling, they had to take blood pre-dose and 2 hours post-dose.
Again they managed to take the first lot of blood first time. Yay!
However, I’m yet to wait if the second lot of blood will be taken without a glitch.
An interesting comment made about the drug is although the tests will help see how my body reacts to the drug as it enters the system, no change in lung function doesn’t necessarily mean the drug isn’t doing its job. There could be a chance I’ve simply not been on the drug long enough for it to have an effect on lung function.
It will be strange not having the drug after my last dose tonight. However, I am looking forward to “what happens next”.
I would say this isn’t the end of the story, but the beginning.